We’ve chosen to use Dr. Charles Fraser down in Houston, TX to perform open heart surgery on Kaden. We’ve sent well Kaden’s cardiologist sent his info down to Dr. Fraser’s office and they received it on Tuesday. So we are one step closer for Dr. Fraser to review Kaden’s info on his heart. :/ I feel comfortable with him doing the surgery, but it will be Kaden’s first open heart surgery. Now we don’t know when it will all take place. We are suppose to take him back November 22nd to his cardiologist for another check up. If his valve (aortic) is leaking more then I believe she said that she will send us to Children’s soon after, may be a few days, to have the TEE done. Which is where they sedate him and do a scope down his throat to get pictures like an echo cardiogram so they can see what exactly his valve is looking like. They did this when he had his catherization back in April ‘08. Then we will go from there.
They originally didn’t want to see back for another 6 months, but since in his previous readings (5/09 11/09) he was fighting so much they couldn’t get a good stable reading. So they wanted to move his appointment up to 3 months so we can hopefully get a good reading like we did on August 12th.
The thing that has got me worried is my common sense lol. Weird I know, but they base his aortic valve leakage on a “z score”. I don’t know if you heart parents are familiar with this or not but the normal range is from -2 to 2. Ok so..
May of 09...he was fighting them soo bad they almost just didn’t do an echo. Ha…anyways his z score reading then was 1.9.…so almost over. :/
November 09...he was fighting but not near as bad. And his z score was -.2. So it dropped a lot since May.
August ‘10...he was awesome. He didn’t fight whatsoever laid there and took it with no problem…they mentioned it was the best reading they ever got…BUT his z score reading then was a 2!!…
So here is what I’m thinking. I may be totally wrong but this what common sense is telling me. Heart moms correct me if you know different. I was thinking ok since he was fighting them soo bad I would think his leakage would be more since his heart is beating faster therefore there would be more back flow.
Hmm…and when he wasn’t fighting AS bad it went down. So it was -.2 when he was fighting but not to much and a 2 when he was still, his valve must be leaking quite a bit more. But then again like my husband said it could also be that they weren’t able to get a clear reading since he was fighting…..
And another question that just popped in my mind was… I don’t know if this has anything to do with it or not…but he has been sitting up in all the appointments prior to this last appointment in August then he was laying down…would that have anything do with the increase????? Ugh. Looks like I’ll be calling his cardiologist tonight.
Any who beside the point lol. I think we will be looking at surgery within the next 3 years. We’re still praying for a miracle of course but we’re also getting ourselves prepared in case God decides to heal him through surgery. Thank you for all the prayers. Thank you for all the comments. Thank you for just being there listening. Or reading lol…
Take care and May God bless you all!!
With love from the ♥,
Kaci
PS: pictures coming soon from our trip to the Ft. Worth Zoo. :)
Friday, September 10, 2010
Thursday, September 2, 2010
Proud Momma!
Kaden is LOVING school...once he actually gets in there and away from mommy that is. Kaden ALWAYS seem to love school when I pick him up, but from the time I wake him up to dropping him off is another story. He started in last Friday by whining when I first wake him up to crying by time we are ready to walk out the door and crying/whining the whole 10 minutes it take to get to his school. Making mommy feel bad and leaves me thinking is this the right time to put him in school since it isn't required right now?!?...
Well starting Tuesday I kept him laughing and smiling by being silly. Hey I'll do whatever it takes to keep him happy until I drop him off. What do I do may you ask?!? HA...remind you Kaden is 4 ok and loves cars. Well as soon as we get off our gravel road onto pavement..yes we live out in the country..I put the sunroof window back and he "thinks" we are going fast because he hears the wind coming from it. Then as soon as we get on one of the main roads that lead to the school...it has a lot of curves...I start being silly by waiting for cars or trucks to pass us (it's a two lane road)...when we don't see any cars I say.."Here car car car..."then if a truck comes I act like I'm scared and say "I didn't say you truck", then vice versa. Sometimes there are times where there aren't cars for a while and I act like the road is mine and be silly by singing crazy songs and then once we see a car I act like I'm mad lol. It keeps him laughing. I only have to do for about 8 mins by the time we get on the main road....Crazy?..Yes. but it keeps my baby happy so I'll do what it takes! Hopefully it won't last for long! HA...
So to the title of this post...I'm a proud mommy for more than one reason of course but today is one in particular... Kaden gets a sticker everyday if he has a good day. Well he has received one since day one. :) but today..not only did he get a "nice work" sticker there was "Good leader" written right above it!!... For those who know Kaden in person. He's SHY! but he gets that from his mom and dad both. We were shy when we were younger...I've come to learn from his Sunday school class and now it's looking like he is now in school... once he becomes comfortable with his surroundings he blossoms. :-) He of course wouldn't tell me what he did other than eat lunch and play on the playground, but I'm proud to see that on today date! I'm tempted to e-mail his teacher and ask how he's doing and what did he do for her to write "Good leader" on his folder. Until then I will continue to be a proud yet "silly" Mommy.
I will update later on the doctor we chosen to use for his surgery so stay tuned. :)
Thank you all for checking in on us. Please keep all the heart, cancer, and sick kiddos in general in your prayers! Take care and May God bless you all!!
With love from the ♥,
Kaci Insall
Well starting Tuesday I kept him laughing and smiling by being silly. Hey I'll do whatever it takes to keep him happy until I drop him off. What do I do may you ask?!? HA...remind you Kaden is 4 ok and loves cars. Well as soon as we get off our gravel road onto pavement..yes we live out in the country..I put the sunroof window back and he "thinks" we are going fast because he hears the wind coming from it. Then as soon as we get on one of the main roads that lead to the school...it has a lot of curves...I start being silly by waiting for cars or trucks to pass us (it's a two lane road)...when we don't see any cars I say.."Here car car car..."then if a truck comes I act like I'm scared and say "I didn't say you truck", then vice versa. Sometimes there are times where there aren't cars for a while and I act like the road is mine and be silly by singing crazy songs and then once we see a car I act like I'm mad lol. It keeps him laughing. I only have to do for about 8 mins by the time we get on the main road....Crazy?..Yes. but it keeps my baby happy so I'll do what it takes! Hopefully it won't last for long! HA...
So to the title of this post...I'm a proud mommy for more than one reason of course but today is one in particular... Kaden gets a sticker everyday if he has a good day. Well he has received one since day one. :) but today..not only did he get a "nice work" sticker there was "Good leader" written right above it!!... For those who know Kaden in person. He's SHY! but he gets that from his mom and dad both. We were shy when we were younger...I've come to learn from his Sunday school class and now it's looking like he is now in school... once he becomes comfortable with his surroundings he blossoms. :-) He of course wouldn't tell me what he did other than eat lunch and play on the playground, but I'm proud to see that on today date! I'm tempted to e-mail his teacher and ask how he's doing and what did he do for her to write "Good leader" on his folder. Until then I will continue to be a proud yet "silly" Mommy.
I will update later on the doctor we chosen to use for his surgery so stay tuned. :)
Thank you all for checking in on us. Please keep all the heart, cancer, and sick kiddos in general in your prayers! Take care and May God bless you all!!
With love from the ♥,
Kaci Insall
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