And the Doctor is….

We’ve chosen to use Dr. Charles Fraser down in Houston, TX to perform open heart surgery on Kaden. We’ve sent well Kaden’s cardiologist sent his info down to Dr. Fraser’s office and they received it on Tuesday. So we are one step closer for Dr. Fraser to review Kaden’s info on his heart. :/ I feel comfortable with him doing the surgery, but it will be Kaden’s first open heart surgery. Now we don’t know when it will all take place. We are suppose to take him back November 22nd to his cardiologist for another check up. If his valve (aortic) is leaking more then I believe she said that she will send us to Children’s soon after, may be a few days, to have the TEE done. Which is where they sedate him and do a scope down his throat to get pictures like an echo cardiogram so they can see what exactly his valve is looking like. They did this when he had his catherization back in April ‘08. Then we will go from there.

They originally didn’t want to see back for another 6 months, but since in his previous readings (5/09 11/09) he was fighting so much they couldn’t get a good stable reading. So they wanted to move his appointment up to 3 months so we can hopefully get a good reading like we did on August 12th.

The thing that has got me worried is my common sense lol. Weird I know, but they base his aortic valve leakage on a “z score”. I don’t know if you heart parents are familiar with this or not but the normal range is from -2 to 2. Ok so..

May of 09...he was fighting them soo bad they almost just didn’t do an echo. Ha…anyways his z score reading then was 1.9.…so almost over. :/

November 09...he was fighting but not near as bad. And his z score was -.2. So it dropped a lot since May.

August ‘10...he was awesome. He didn’t fight whatsoever laid there and took it with no problem…they mentioned it was the best reading they ever got…BUT his z score reading then was a 2!!…

So here is what I’m thinking. I may be totally wrong but this what common sense is telling me. Heart moms correct me if you know different. I was thinking ok since he was fighting them soo bad I would think his leakage would be more since his heart is beating faster therefore there would be more back flow.
Hmm…and when he wasn’t fighting AS bad it went down. So it was -.2 when he was fighting but not to much and a 2 when he was still, his valve must be leaking quite a bit more. But then again like my husband said it could also be that they weren’t able to get a clear reading since he was fighting…..
And another question that just popped in my mind was… I don’t know if this has anything to do with it or not…but he has been sitting up in all the appointments prior to this last appointment in August then he was laying down…would that have anything do with the increase????? Ugh. Looks like I’ll be calling his cardiologist tonight.

Any who beside the point lol. I think we will be looking at surgery within the next 3 years. We’re still praying for a miracle of course but we’re also getting ourselves prepared in case God decides to heal him through surgery. Thank you for all the prayers. Thank you for all the comments. Thank you for just being there listening. Or reading lol…
Take care and May God bless you all!!

With love from the ♥,
Kaci

PS: pictures coming soon from our trip to the Ft. Worth Zoo. :)